good day

today is another good day.  the good days started yesterday.  why?  i think it may have something to do with the fact the insurance company approved my request for lifesaving meds last thursday and because i have great friends who pushed me to scream at the folks in charge of distributing the meds so i was able to commence taking them saturday instead of waiting until yesterday (wednesday).

it is an ugly story, in that bureaucracy and people who don't have your back are in charge of your fate, ugly story.  which included my oncology nurse and a pharmacy tech from flint, michigan.  that is unless you kick them in the crotch or clang your cowbell in their ear while they sleep, which is what my friend rendy suggested or rather demanded i do.  which pissed me off because i had done all i thought i could do, i got the insurance to cover the meds for a $30 co-pay but because of labor day the delivery was going to be delayed one week.  i guess i was so happy that the expensive meds were covered and that i had already talked twice with the pharmacy regarding speeding up delivery but to no avail that i was somewhat ok with the delay.  but my body wasn't ok with the delay.  the cancer was metastisizing rapidly and i felt as if i was turning into a marble statue.

so i call rendy to tell her the mixed bag of good news but she wasn't havin' it, in fact she asked me who was advocating on my behalf because she knew i was in pain and exhausted and needed help, she knew i needed those meds and i needed help getting them.  so because of her and a previously planned trip to chicago (and the fact that the mail order pharmacy has a store in chicago) i made a tear-filled phone call to the pharmacy, i was able to begin taking my $18,571.00/month meds last saturday.  and i haven't felt this good in months.  fuckin' a charo.